Showing posts with label decisions. Show all posts
Showing posts with label decisions. Show all posts

Wednesday, 4 September 2013

Councils must face difficult decisions on NHS with leadership, not hyperbole

Demonstrator opposes A&E closures in Lewisham Councils are becoming increasingly aggressive in their opposition to hospital trust moves such as changing an accident and emergency unit. Photograph: Leon Neal/AFP/Getty Images

Councils are becoming increasingly aggressive in their opposition to hospital trust moves, such as changing an accident and emergency unit into a more modest urgent care centre.

In the high court, Lewisham council won a major victory, blocking changes to their local hospital that were part of a plan to save the imploding South London Healthcare Trust.

In west London, Ealing is objecting to changes to A&E services, while down the M4 Windsor and Maidenhead is fighting a plan to move a minor injuries unit to Bracknell and close a birth unit. Trafford council has voted unanimously to fight the closure of the A&E unit at Trafford general hospital, which at peak times see seven patients an hour according to the Department of Health, and expand services nearby.

Councils are taking these actions while they themselves are making similar difficult decisions – closing, downgrading or sharing services, and sometimes handing them over to someone who is doing it better – such as Hampshire county council taking over Isle of Wight's children's services. Is there a whiff of hypocrisy?

Local governments scrutiny of the NHS is often the service's only effective democratic oversight. Foundation trusts have a fig leaf of public accountability through their membership schemes, but there are few trusts who can seriously claim members make much difference.

But councils' local mandate should not be an excuse for hysterical overstatement about what is being proposed. When the high court blocked Ealing's attempt to judicially review the west London accident and emergency reorganisation the council described the GP-led plans as "monstrous", with leader Julian Bell claiming: "The NHS want to treat the people of Ealing as guinea pigs in the largest experiment in its history".

This sort of hyperbole is irresponsible. Spreading the idea that the NHS wants to treat an entire borough's residents in such a way is itself monstrous. It crudely plays on the fears of local people and obliterates the chance of an intelligent discussion about what is being proposed.

Ealing has faced its own tough decisions, such as changes to its services for people with learning disabilities. Surely it must know that everyone loses when debate around reforming – and sometimes simply closing – public services is reduced to invective.

Of course, councils cannot simply abdicate taking a position on something of such profound local interest. On the contrary, if community leadership is to mean anything, it needs to be a vigorous participant in the debate.

But that means actually leading, not unthinkingly following the gut reaction to oppose. It is now clear from Local Government Association analysis that the 2015-16 spending review has left councils facing cuts of up to another 16% – not the 10% that the government stated. If anyone has a vested interest in raising the quality of public debate about how to manage cuts in public services it is local government.

When it comes to their own services, councils are demonstrating a willingness to look at a radical solutions which can offer residents a better service for less money. Trafford is one of them – leading the way in redesigning adult services by championing reablement.

Councils have a duty to scrutinise, question and debate reforms to local health services. Sometimes those proposals will be found wanting – as Lewisham demonstrated. But dogmatic defence of the status quo in defiance of the best long-term interests of patients is a serious error of judgement, even if it may be superficially and tactically appealing.

These difficult discussions between councils and the NHS will be a major feature of local government for the next decade. Attempting to drag proposals through judicial review cannot be the default response. Where that happens it is an indication of failure on both sides. There are numerous examples of where councils and local NHS services have collaborated effectively to make the right, difficult decision.

As the community leaders, councils must be in at the beginning of these debates – helping shape them, questioning them, but also accepting where the evidence leads, and having the courage to support the outcome.

• What do you think? Email sarah.marsh@theguardian.com if you want to contribute an article to this debate.

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Monday, 19 August 2013

Factors influencing medical decisions for a cognitively impaired family member

Main Category: Public Health
Also Included In: Alzheimer's / Dementia
Article Date: 19 Aug 2013 - 1:00 PDT Current ratings for:
Factors influencing medical decisions for a cognitively impaired family member
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Decision-making by a surrogate for a family member who is unable to make medical decisions is more complicated than decision-making by patients themselves, according to a study from the Regenstrief Institute, Indiana University Center for Aging Research and the Charles Warren Fairbanks Center for Medical Ethics of Indiana University Health.

The researchers found that family decision-makers considered the cognitively impaired patient's wishes and interests. But they also took into account their own needs and preferences.

Factors influencing surrogate decision-makers included:

Respect for the patient's input. The patient's prior wishes. Consideration of the patient's best interests. The surrogate's own wishes as a guide. The surrogate's religious and spiritual beliefs. The surrogate's own interests. Family consensus.

"Family members often say that they wish they knew more about their loved one's views on medical care," said Regenstrief Institute investigator Alexia Torke, M.D., associate professor of medicine at the IU School of Medicine and an IU Center for Aging Research scientist. "And whether or not surrogates know what the patient would have wanted had they been able to make the decision for themselves, we learned that family members may feel compelled to substitute what they themselves want, or to paraphrase the Golden Rule: do to others as you would have them do to you.

"Surrogates also consider the feelings and beliefs of other family members," said Dr. Torke, senior author of the study. "The individuals who are making decisions for those who cannot are the survivors - they take into account the fact that they have to live with other family members as and after they make surrogate decisions."

"Making Decisions for Hospitalized Older Adults: Ethical Factors Considered by Family Surrogates" is published in the Summer 2013 issue of the Journal of Clinical Ethics.

An estimated four out of 10 hospitalized adults lack decision-making capacity due to cognitive impairment. When patients are unable to make their own decisions, surrogates often are called upon. Dr. Torke notes that the need for surrogate decision-making is growing as life-sustaining medical technology becomes more available, the population ages, and the prevalence of diseases such as Alzheimer's and other forms of dementia increases.

In the study, the investigators interviewed 35 surrogates with a recent decision-making experience for a hospital patient age 65 or older. The group was almost evenly split between white and African-American surrogates. Eighty percent of the respondents were female; 60 percent were the daughters of the cognitively impaired patient.

"Because surrogates also imagine what they would want under the circumstances and consider their own needs and preferences as well as those of the patient for whom they are acting, standard ethical models of surrogate decision-making [in the academic literature] must account for these additional considerations," the paper noted. "Surrogates' desire for more information about patient preferences suggests a need for greater advance care planning."

Article adapted by Medical News Today from original press release. Click 'references' tab above for source.
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IU School of Medicine student Jenna Fritsch, B.S., is first author of the paper. Co-authors, in addition to Dr. Torke, are Sandra Petronio, Ph.D., of the Department of Communication Studies in the IU School of Liberal Arts at Indiana University-Purdue University Indianapolis; and Paul R. Helft, M.D., of the Department of Medicine at the IU School of Medicine and the IU Melvin and Bren Simon Cancer Center. Drs. Torke, Petronio and Helft are members of the Charles Warren Fairbanks Center for Medical Ethics at IU Health, of which Dr. Helft serves as the director.

Dr. Torke was supported by an award [K23AG031323] from the National Institute on Aging at the National Institutes of Health. Fritch was supported by the Medical Student Training in Aging Research program, administered by the American Federation for Aging Research and the National Institute on Aging. The content of the study is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.

Indiana University

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